Start date:
January 2014
End date:
December 2018
Economic and Social Research Council


This longitudinal cohort study, using a mixed methods approach, focuses on the potential for living well with dementia from the perspective of people with dementia and their primary carers. By living well, we mean maximising life satisfaction, reaching one's potential for well-being, and experiencing the best possible quality of life in the context of the challenges that dementia presents for individuals, relationships and communities. We will draw together expertise from psychology, sociology, medicine, public health, economics, social policy, physiology and statistics to examine in detail what can be done to ensure that as many people as possible are enabled to live well with dementia. 


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Research team
Linda Clare
Josie Henley
Research Associate
Cardiff University

Journal Articles
Dualities of dementia illness narratives and their role in a narrative economy
The concept of ‘narrative economies’ has recently been proposed as a set of exchange relationships that, through biography and story‐telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative...
Journal Articles
"I Don't Think of It As An Illness": Illness Representations in Mild to Moderate Dementia
Journal of Alzheimer's Disease 51(1) pp 139-150 The self-regulatory model proposes that illness representations influence adjustment and coping in chronic conditions. Better understanding of the illness representations held by people with dementia could help with targeting...
Journal Articles
Illness Representations in Caregivers of People with Dementia
Aging & Mental Health 21(5) pp 553-561 Objectives: Illness representations shape responses to illness experienced by the self or by others. The illness representations held by family members of those with long-term conditions such as dementia influence their understanding of...