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‘We’re happy as we are’: the experience of living with possible undiagnosed dementia

It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study…

BMC Geriatrics
Characteristics of people living with undiagnosed dementia: findings from the CFAS Wales study

Background Many people living with dementia remain undiagnosed, with diagnosis usually occurring long after signs and symptoms are present. A timely diagnosis is important for the wellbeing of the person living with dementia and the family, allowing them to plan and have access to support services sooner. The aim of this study was to identify…

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“I Don’t Think of It As An Illness”: Illness Representations in Mild to Moderate Dementia

The self-regulatory model proposes that illness representations influence adjustment and coping in chronic conditions. Better understanding of the illness representations held by people with dementia could help with targeting information and support so as to optimize adjustment and coping. In this mixed-methods study of illness representations among people with mild to moderate Alzheimer’s, vascular, or mixed…

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Making the Case for the Social Sciences: Wales

WISERD, in partnership with the Research Institute for Applied Social Science (RIASS) and the Academy of Social Science, have today launched a new booklet showcasing the vast array of social science research taking place in Wales; titled ‘Making the Case for the Social Sciences 10 – Wales’. It includes a new study by Welsh researchers which…

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Unified Assessment in Wales: older people with complex needs and their families

This report presents key findings from a recent study looking at the implementation of Unified Assessment (UA) from key stakeholder perspectives, including, older people, their carers and staff working in health and social care organizations. The work was funded by the Wales Office of Research and Development for Health and Social Care. This research was…

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Carers with Chronic Conditions: Changes Over Time in their Physical Health

Objectives: To explore the experiences of individuals with chronic conditions who are also caring for another person, usually a family member. Method: A postal questionnaire was distributed to carers across Wales on three occasions approximately 18 months apart. It included the SF-12v2 together with fixed-choice and open-ended questions relating to carer demographics, carer assessment, support…

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A Study of the Carers Strategy (2000): Supporting Carers in Wales

The Carers Strategies in England and Wales herald opportunities to develop new ways to support carers. This paper reports findings from a five-year study looking at the Carers Strategy in Wales. It presents interview data arising from fieldwork with carers and statutory and voluntary sector staff. Our findings highlight a gap between the positive perceptions…